This is part of the material we used to recruit participants to our workshop in 2024. The workshops are now closed, but we think this is a good example of how to think about communication with participants. For more information about the findings from the workshop, visit High Level Guidance.
The connection between someone in a clinical research study and their study team is important. It can change how safe, supported, and informed the person may feel throughout their experience. CT:IQ, the VCCC Alliance and Hunter Medical Research Institute are doing the Beyond the Form project to find ways to improve communication between study teams and the people taking part in the studies.
If you have taken part (or have supported someone else to take part) in a clinical research study in Australia, you are invited to join us for two 2-hour workshops, with a small group of other people who have also taken part in research studies. These will be either online or in-person in Singleton, NSW, between March-April 2024.
In the workshops we will look at some real past examples of how research teams have communicated with participants, and ask you how you think and feel about it. Then, we’ll also ask you to think big! Together, we’ll come up with good, sensitive and interesting ways that researchers could keep the people taking part in their research engaged, in-the-know and up-to-date during research studies, through to finding out about the study results.
A short video introducing the Beyond the Form project
A short video about participant workshops